Who We Are
We are a Parkinson's disease patient advocacy organisation dedicated to supporting and empowering Africans impacted by Parkinson's disease (PD) - this includes the family, friends, relatives, carers, etc., of of those diagnosed.
We envision all Africans impacted by PD having access to the informational, educational, support and healthcare resources needed to live empowered lives.
To create a comprehensive, dynamic and centralised African PD resource hub that will provide or improve access to relevant informational, educational, support, and healthcare resources.
We believe that, by working together, we can significantly raise the levels of awareness and understanding of Parkinson's across Africa, reduce misconceptions and corresponding stigma surrounding the disease, and transform the Parkinson's disease landscape across Africa.
The only way to do this is through forming strategic partnerships - partnerships with local and international organisations, governmental and non-governmental organisations, the healthcare industry, and other relevant stakeholders. Please click "Get Involved" below for more information about partnering with us.
Omotola Thomas, MSc
Omotola was diagnosed with Parkinson’s disease in 2016, at 35. She is currently serving as a board member for the World Parkinson Coalition; a patient advocate for IPDGC-Africa; a patient advisory group member for the Community for Research Involvement and Support for people with Parkinson’s (CRISP) at Kings Hospital; and as an ambassador for the 6th World Parkinson Congress. She is also a founding member of PD Avengers – an international group of advocates determined to end Parkinson’s.
Ady Dike, MBA
Ady, whose father has Parkinson's, has over two decades of experience in strategic, operational and project management roles. She has been a member of Governance Committees in the public and not for profit sectors and has experience of ensuring companies are properly governed and fulfilling legal and regulatory requirements. She is currently serving as a trustee on the MS Society and the Government Internal Audit Agency (GIAA), and is pursuing a doctorate degree at University of Central Lancashire.
Ferdinard Okwor, FCA
Ferdinard is a Sloan Fellow of the London Business School and a versatile executive with two decades of experience in the public, private and international development sectors across geographies. He is a professional accountant with strong expertise in strategy, corporate governance as well as financial, project and people management and a committed advocate for the vulnerable, deprived and less privileged in society. He currently serves on the Board (Treasurer) of Causeway Irish Housing Association.
Dugie Young, MPA/MPP
Dugie is an international development professional, specialising in agriculture and rural development, with experience in economic and financial consulting. Currently, he is based in Côte d'Ivoire and works for GIZ's MOVE, a regional program that targets the rice and cashew value chains in five West African countries. He has previously volunteered for a number of charitable organisations and also co-founded the Columbia Effective Altruism group.
Rachel Agwu, Bsc.
Rachel is our Operations Coordinator, responsible for coordinating administrative duties and operations. Rachel got diagnosed with young-onset Parkinson’s disease in 2020, at the age of 32. As an African impacted by Parkinson’s disease (PD), Rachel understands and has experienced the heavy burden of stigma that is often associated with an illness like PD across different parts of Africa; and the inequities in access to proper healthcare and treatment options across the region. The experiences have led her to become a passionate Parkinson’s disease advocate. Outside of championing the needs of Africans whose lives have also been impacted by this disease, Rachel enjoys visual storytelling. She hopes to inspire people to live their best lives, in spite of whatever challenges they may be facing.
Tania Park, MA
Tania is an experienced leader in the charity and corporate sectors, with a background in strategic management, information technology, governance, programme delivery, and fundraising in the UK and abroad. While working in IT, Tania volunteered for a charity working in Africa and visited Zambia for the first time in 2007. This sparked her enthusiasm for the charity sector and for working in Africa. Tania has since become an advocate for social change through various roles, having made a career switch from the corporate to the charity sector. Over the past 15 years, she's worked for social enterprises and charities focused on helping underprivileged people all over the world, from developing and implementing youth and health programmes to fundraising for several causes. Tania holds a master's degree in charity management from St. Mary's University in London, and she is determined to use her skills, knowledge, and experience to help other people and causes.
Hannington Kabugo, Bsc.
Hannington is responsible for coordinating the community engagement and involvement programme in East Africa. He holds a bachelor’s degree in food processing technology and has worked with the Kampala Capital City Authority in Uganda as a food and beverage supervisor. When his mother was diagnosed with Parkinson's Disease, Hannington was deeply affected by seeing firsthand how his mother was stigmatised and mistreated, being referred to as a "witch" because of her condition, and eventually died from Parkinson's. Hannington founded Parkinson's Si Buko Uganda (Parkinson's is not witchcraft) to raise awareness, support, and medication availability for others like his mother in Uganda. Hannington works with Parkinson's Africa's staff and volunteers, key partners, and stakeholders to help PD patients access the information, support, and medication they need to live empowered lives.