We are a UK-registered charity that works with a variety of local Parkinson's charities, partners, support groups, and medical professionals to support and empower Africans impacted by Parkinson's disease. We were founded on the simple belief that no one with Parkinson's disease should have to go through it alone or without the education, support, and healthcare resources they need to best deal with it.
We know, from our own first-hand experiences and from published studies, that people across many parts of Africa have the wrong idea about Parkinson's disease. This misunderstanding and misinformation often leads to people with the disease being stigmatised and left alone, which makes an already difficult disease even more difficult to deal with. Clinical and social care, support, and medication are very limited in some places, and in others, they don't exist at all. This makes it very hard to live well with the disease and keep it under control. In addition, Africans affected by Parkinson's disease are grossly underrepresented in Parkinson's research studies and clinical trials.
We were established to address the needs identified above; to champion the causes of Africans impacted by Parkinson's disease; and to unify, coalesce and strengthen the African Parkinson's disease community.
An empowered African Parkinson’s disease society. By that, we mean communities across Africa where those diagnosed with Parkinson's disease, their families, carers, and other loved ones, have the information, tools and resources they need to take control of the management of their condition.
To transform the Parkinson’s disease landscape across Africa, community by community, into societies where those affected have equitable access to quality healthcare, research, support, information, and educational resources.
Our Core Values are
We care deeply about the needs of those we serve.
We are honest and forthright in our dealings and we believe that building trust builds a better organisation.
We believe that everyone should have access to the healthcare and treatment options needed to live a healthy life.
We make a commitment to achieving and delivering the best result for the growth of the organisation.
Through collaboration we multiply our contribution. Together, we are stronger and can contribute more.
What We Do
If you are an African whose life has been impacted by Parkinson’s disease, you are at the centre of everything we do. We help Africans impacted by Parkinson's disease through advocacy, support, education and access to clinical services.
We were founded on the simple belief that no one affected by Parkinson's disease should have to face it alone. Yet, very little is known about Parkinson's disease in Africa. Learn more about why the charity was established.
We are governed and led by a dedicated group of trustees, staff, volunteers and advisers who work tirelessly to ensure we are doing everything possible to support our beneficiaries and help them live empowered lives.
We are incredibly lucky to have the support of extremely generous funders, dedicated and skilled delivery partners, corporate organisations, and many kind individuals who help make our mission a reality.
Whether you are a person with Parkinson's disease, a carer, a medical professional, a partner organisation, a volunteer, a funder, or a supporter, we'd love to hear from you. You can contact us via the web site form or by emailing us at email@example.com. We appreciate your interest in our organisation.